Sevyn Wess Moore (July 4, 2013 - August 14, 2013) Sevyn's 40-day life was a precious gift, marked by courage and resilience as he faced Hirschsprung disease. Though he's gone, his legacy inspires us to raise awareness and advocate for a cure. We celebrate his life annually on July 4th, honoring his memory and recommitting to the fight against Hirschsprung disease. Rest in peace, dear Sevyn.